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From humble beginnings: the development of the Participatory Autism Research Collective (PARC)

Milton, Damian (2021) From humble beginnings: the development of the Participatory Autism Research Collective (PARC). In: Inagural Aspect Research Centre for Autism Practice (ARCAP) Conference, 21-22 Oct 2021, Online. (Unpublished) (KAR id:91021)


In recent years, the call for more meaningful participatory research with the autistic and wider autism communities has grown louder. This presentation outlines key issues regarding participatory research, utilising experiences from a range of projects, such as the ‘Transform Autism Education’ project, and the ‘Sensory School’ project. The role of the Participatory Autism Research Collective (PARC) based in the UK will also be explored. This network was initially set up with the purpose of bringing autistic people, including scholars and activists, together with early career researchers and practitioners who work with autistic people, with the aim being to build a community where those who wished to see more significant involvement of autistic people in autism research could share knowledge and expertise. In supporting autistic people in their attempts to establish themselves within academic systems that may not always be considerate or accommodating, the existence of PARC creates a structure with which autistic people can influence social change. PARC serves as a network of support, strengthening the presence of autistic scholars in academia. Through this presentation it is hoped more connections can be made with wider international networks.

Item Type: Conference or workshop item (Keynote)
Uncontrolled keywords: Autism, Participation, Participatory research
Subjects: L Education
R Medicine > RC Internal medicine > RC553.A88 Autism. Asperger's syndrome
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Depositing User: Damian Milton
Date Deposited: 21 Oct 2021 18:33 UTC
Last Modified: 10 Dec 2022 23:40 UTC
Resource URI: (The current URI for this page, for reference purposes)

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