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‘Even a Self-Advocate Needs to Buy Milk’ – Economic Barriers to Self-Advocacy in the Autism and Intellectual Disability Movement

Petri, Gabor, Beadle-Brown, Julie, Bradshaw, Jill (2021) ‘Even a Self-Advocate Needs to Buy Milk’ – Economic Barriers to Self-Advocacy in the Autism and Intellectual Disability Movement. Scandinavian Journal of Disability Research, 23 (1). pp. 180-191. ISSN 1501-7419. E-ISSN 1745-3011. (doi:10.16993/sjdr.738) (KAR id:89061)

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Official URL:
https://doi.org/10.16993/sjdr.738.s1

Abstract

Autistic people and people with an intellectual disability have been actively involved in disability advocacy; however, it is still often parents and professionals who lead organisations speaking on their behalf. Previous studies have found that autistic self-advocates and self-advocates with an intellectual disability have been systematically marginalised in the disability movement. This article appraises how economic factors influence self-advocates’ position within the disability movement, based on qualitative analysis of data collected in two countries, the UK and Hungary. The study found that lack of resources, poverty and unpaid positions at organisations strongly hinder self-advocates’ participation in advocacy/disability rights organisations speaking for them. Findings also suggest that practices of disability organisations may contribute to maintaining these barriers.

Item Type: Article
DOI/Identification number: 10.16993/sjdr.738
Uncontrolled keywords: disability advocacy, autism, intellectual disability, disability movement, income, poverty, hierarchy, inequalities, social movements
Subjects: H Social Sciences > HV Social pathology. Social and public welfare > HV1568 Disability studies
R Medicine > RC Internal medicine > RC553.A88 Autism. Asperger's syndrome
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Depositing User: Gabor Petri
Date Deposited: 07 Jul 2021 06:23 UTC
Last Modified: 08 Jul 2021 08:22 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/89061 (The current URI for this page, for reference purposes)
Petri, Gabor: https://orcid.org/0000-0002-5033-7838
Beadle-Brown, Julie: https://orcid.org/0000-0003-2306-8801
Bradshaw, Jill: https://orcid.org/0000-0002-0379-8877
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