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The road barely taken: funerals and people with intellectual disabilities

Forrester-Jones, Rachel (2013) The road barely taken: funerals and people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 26 (3). pp. 243-256. ISSN 1360-2322. (doi:10.1111/jar.12022) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided. (Contact us about this Publication)
Official URL
http://dx.doi.org/10.1111/jar.12022

Abstract

Background: The topic of funerals within the life cycle approach to care in the UK remains largely absent. This small exploratory study sought to investigate how practitioners deal with this sensitive issue and to capture the views of older people with and without intellectual disabilities about funerals. Methods: A semi-structured questionnaire was administered to 40 service managers, and five focus groups for 26 people with and without intellectual disabilities were facilitated. Questionnaires were subjected to thematic content analysis; focus group data were analysed using a grounded theory approach. Results: Managers demonstrated confusion about organizing the funerals of people with intellectual disabilities. Few differences existed between the views of people with and without intellectual disabilities in relation to funerals and a number of core themes were identified including the lack of opportunities to attend funerals. Conclusions: More thought and practical interventions are needed to support vulnerable people to participate in the funerals of people they know.

Item Type: Article
DOI/Identification number: 10.1111/jar.12022
Uncontrolled keywords: Funerals; Intellectual disability; Older people
Subjects: H Social Sciences > HV Social pathology. Social and public welfare > HV1568 Disability studies
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Tizard
Depositing User: Rachel Forrester-Jones
Date Deposited: 09 Apr 2013 14:20 UTC
Last Modified: 20 Jun 2019 13:35 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/33557 (The current URI for this page, for reference purposes)
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