Skip to main content

The Sibling's Perspective: Experiences of Having a Brother or Sister with an Intellectual Disability and Behaviour Described as Challenging

Chase, Jennifer, McGill, Peter (2019) The Sibling's Perspective: Experiences of Having a Brother or Sister with an Intellectual Disability and Behaviour Described as Challenging. Tizard Learning Disability Review, 24 (3). pp. 138-146. ISSN 1359-5474. (doi:10.1108/TLDR-11-2018-0032)

MS Word - Author's Accepted Manuscript
Download (44kB)
[img]
Official URL
https://doi.org/10.1108/TLDR-11-2018-0032

Abstract

Purpose

Siblings of individuals with disabilities provide the most long-term care for an individual with disabilities, yet research on their experiences is limited. A majority of previous research focuses on young siblings from a parent’s viewpoint. The purpose of this paper is to investigate the effects of having a sibling with a disability and behaviour described as challenging from adult siblings’ perspectives.

Findings

Siblings described a multifaceted impact on their lives. They attributed aspects of their career choices, personal characteristics and family dynamics to having a sibling with a disability and behaviour that challenges. Siblings stressed the inadequate support that they have received throughout their lives. They are, in a sense, the invisible carers for their sibling but they are perceived by society as just a sibling. Siblings described an optimistic perspective on their lives, even though they expressed the difficulties that they have faced.

Practical implications

This study reinforces the need for more support for siblings of individuals with disabilities in childhood and in adulthood.

This paper provides perspectives of individuals that have not been fully represented in previous research.

Item Type: Article
DOI/Identification number: 10.1108/TLDR-11-2018-0032
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Tizard
Depositing User: Peter McGill
Date Deposited: 28 May 2019 10:19 UTC
Last Modified: 01 Oct 2019 15:37 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/74135 (The current URI for this page, for reference purposes)
  • Depositors only (login required):

Downloads

Downloads per month over past year