Waldock, Krysia Emily (2019) Commentary on “Thinking differently? Autism and quality of life”. Tizard Learning Disability Review, 24 (2). pp. 77-81. ISSN 1359-5474. (doi:10.1108/TLDR-02-2019-0006) (KAR id:74112)
PDF
Author's Accepted Manuscript
Language: English |
|
Download this file (PDF/305kB) |
Preview |
Request a format suitable for use with assistive technology e.g. a screenreader | |
Microsoft Word
Author's Accepted Manuscript
Language: English |
|
Download this file (Microsoft Word/23kB) |
|
Request a format suitable for use with assistive technology e.g. a screenreader | |
Official URL: https://doi.org/10.1108/TLDR-02-2019-0006 |
Abstract
Purpose:
This paper describes the possible impact of normalisation on perceptions of quality of life, and the impact of this association on the research to date. This commentary reflects on the implications of limiting quality of life research to autistic people who are perceived to be ‘more able’.
Design/methodology/approach:
This commentary discusses the implications of undertaking quality of life research in the field of autism.
Findings:
This commentary argues for further consideration of the autistic voice in quality of life research. Researcher epistemology and life experience, including experience of autistic people are examined, in terms of how quality of life might be perceived and attributed. Further participatory research around quality of life of autistic people, including those with a learning disability, and engagement with a variety of autistic people, are called for.
Originality/value:
This commentary suggests that existing definitions of quality of life, founded on principles of normalisation, may not be completely applicable to autistic people, and that new ways of both defining and measuring quality of life might be needed
Item Type: | Article |
---|---|
DOI/Identification number: | 10.1108/TLDR-02-2019-0006 |
Uncontrolled keywords: | autism; participatory research; co-production; quality of life; learning disability; normalization |
Subjects: | H Social Sciences > HV Social pathology. Social and public welfare > HV1568 Disability studies |
Divisions: | Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard |
Depositing User: | Krysia Waldock |
Date Deposited: | 07 Sep 2019 11:24 UTC |
Last Modified: | 05 Nov 2024 12:37 UTC |
Resource URI: | https://kar.kent.ac.uk/id/eprint/74112 (The current URI for this page, for reference purposes) |
- Link to SensusAccess
- Export to:
- RefWorks
- EPrints3 XML
- BibTeX
- CSV
- Depositors only (login required):