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Exploring the Impact of Mental Capacity on Breast Screening for Women with Intellectual Disabilities

Bates, Claire, Triantafyllopoulou, Paraskevi (2018) Exploring the Impact of Mental Capacity on Breast Screening for Women with Intellectual Disabilities. Health and Social Care in the Community, 27 (4). pp. 880-888. ISSN 1365-2524. (doi:10.1111/hsc.12704) (KAR id:71438)

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This study explores the impact of mental capacity in relation to breast screening for women with intellectual disabilities (ID) in the UK. Participation in breast screening is considerably lower for women with ID compared to the general population. Barriers to screening include poor mobility and behavioural difficulties. There is currently no research which primarily explores the relationship between mental capacity and breast screening for this group of individuals. This paper presents the results of a cross sectional survey of 131 women with ID supported by eight Social Care Providers within England and Wales. The data was collected between January 2017 and July 2017. The current research explores the decision-making process surrounding breast screening, considering the impact of associated risk factors during this process. Participants completed a specifically created survey addressing the aforementioned issues. The results indicated that women who lacked capacity, were less likely to engage in breast screening. It was also demonstrated that the process outlined in the Mental Capacity Act (MCA) (2005) was not always followed; women were not routinely assessed if there were doubts regarding their decision-making ability around breast screening and best interest meetings (BIM) were not always held if the person lacked capacity. In order to be able to generalise the current findings, further research is needed to gain a broader understanding of how professionals make decisions surrounding breast screening for women with ID if the individuals are unable to decide this independently.

Item Type: Article
DOI/Identification number: 10.1111/hsc.12704
Uncontrolled keywords: Intellectual disability, learning disabilities, screening, breast cancer, decision making, health and social care
Subjects: B Philosophy. Psychology. Religion > BF Psychology
H Social Sciences
R Medicine
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Depositing User: Paraskevi Triantafyllopoulou
Date Deposited: 04 Jan 2019 17:29 UTC
Last Modified: 09 Dec 2022 04:16 UTC
Resource URI: (The current URI for this page, for reference purposes)

University of Kent Author Information

Bates, Claire.

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Triantafyllopoulou, Paraskevi.

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