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Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review

Flynn, Samantha, Vereenooghe, Leen, Hastings, Richard P., Adams, Dawn, Cooper, Sally-Ann, Gore, Nick J., Hatton, Chris, Hood, Kerry, Jahoda, Andrew, Langdon, Peter E., and others. (2017) Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review. Clinical Psychology Review, 57 . pp. 32-44. ISSN 0272-7358. (doi:10.1016/j.cpr.2017.08.006) (KAR id:62858)


Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n=41,232) and full-text articles (n=573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.

Item Type: Article
DOI/Identification number: 10.1016/j.cpr.2017.08.006
Uncontrolled keywords: Intellectual disabilities; Mental health; Mental illness; Psychiatric disorder; Mental well-being; Measurement
Subjects: B Philosophy. Psychology. Religion > BF Psychology
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Depositing User: Peter Langdon
Date Deposited: 16 Aug 2017 12:26 UTC
Last Modified: 04 Mar 2024 17:29 UTC
Resource URI: (The current URI for this page, for reference purposes)

University of Kent Author Information

Gore, Nick J..

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Langdon, Peter E..

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