Skip to main content

Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review

Flynn, Samantha, Vereenooghe, Leen, Hastings, Richard P., Adams, Dawn, Cooper, Sally-Ann, Gore, Nick J., Hatton, Chris, Hood, Kerry, Jahoda, Andrew, Langdon, Peter E., and others. (2017) Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review. Clinical Psychology Review, 57 . pp. 32-44. ISSN 0272-7358. (doi:10.1016/j.cpr.2017.08.006) (KAR id:62858)

PDF Author's Accepted Manuscript
Language: English

Download (400kB) Preview
[thumbnail of Measurement of mental health in people with severe ID review.pdf]
This file may not be suitable for users of assistive technology.
Request an accessible format
Official URL


Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n=41,232) and full-text articles (n=573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.

Item Type: Article
DOI/Identification number: 10.1016/j.cpr.2017.08.006
Uncontrolled keywords: Intellectual disabilities; Mental health; Mental illness; Psychiatric disorder; Mental well-being; Measurement
Subjects: B Philosophy. Psychology. Religion > BF Psychology
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Depositing User: Peter Langdon
Date Deposited: 16 Aug 2017 12:26 UTC
Last Modified: 16 Feb 2021 13:47 UTC
Resource URI: (The current URI for this page, for reference purposes)
Gore, Nick J.:
  • Depositors only (login required):


Downloads per month over past year