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Palliative care for patients with motor neurone disease: current challenges

Oliver, David J. (2016) Palliative care for patients with motor neurone disease: current challenges. Degenerative Neurological and Neuromuscular Disease, 16 . pp. 65-72. (doi:10.2147/DNND.S85103)

Abstract

Motor neurone disease is a progressive disease, and the patient and his/her family face many challenges during the disease progression, with increasing weakness and multiple losses of function. The provision of care for these patients and their families is equally challenging, anticipating and responding to the person's needs. There are increasing challenges as more is understood about the disease and its management, including the genetic basis, cognitive change, the use of interventions such as ventilatory support, and gastrostomy. There is also an increasing need to ensure that the later stages are recognized so that all can be more prepared for the end of life, including recognition of deterioration and end of life, advance care planning, symptom management and psychosocial care at the end of life, and coping with requests for assisted dying. Careful assessment and good multidisciplinary team (MDT) work can enable patients and their families to have as good a quality of life as possible, and allow a peaceful death of the patient.

Item Type: Article
DOI/Identification number: 10.2147/DNND.S85103
Uncontrolled keywords: Amyotrophic lateral sclerosis, end of life care, cognitive change, noninvasive ventilation, gastrostomy, advance care planning
Subjects: H Social Sciences
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Tizard
Depositing User: Jo Ruffels
Date Deposited: 29 Sep 2016 14:23 UTC
Last Modified: 29 May 2019 17:55 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/57579 (The current URI for this page, for reference purposes)
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