A consensus review on the development of palliative care for patients with chronic and progressive neurological disease

Oliver, David J. and Borasio, G.D. and Caraceni, A. and de Visser, M. and Grisold, W. and Lorenzl, S. and Veronese, Simone and Voltz, R. (2016) A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. European Journal of Neurology, 23 (1). pp. 30-38. ISSN 1351-5101. (doi:https://doi.org/10.1111/ene.12889) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

PDF - Author's Accepted Manuscript
Download (450kB) Preview
PDF - Publisher pdf
Restricted to Repository staff only
Contact us about this Publication Download (289kB)
Official URL


BACKGROUND AND PURPOSE: The European Association of Palliative Care Taskforce, in collaboration with the Scientific Panel on Palliative Care in Neurology of the European Federation of Neurological Societies (now the European Academy of Neurology), aimed to undertake a review of the literature to establish an evidence-based consensus for palliative and end of life care for patients with progressive neurological disease, and their families. METHODS: A search of the literature yielded 942 articles on this area. These were reviewed by two investigators to determine the main areas and the subsections. A draft list of papers supporting the evidence for each area was circulated to the other authors in an iterative process leading to the agreed recommendations. RESULTS: Overall there is limited evidence to support the recommendations but there is increasing evidence that palliative care and a multidisciplinary approach to care do lead to improved symptoms (Level B) and quality of life of patients and their families (Level C). The main areas in which consensus was found and recommendations could be made are in the early integration of palliative care (Level C), involvement of the wider multidisciplinary team (Level B), communication with patients and families including advance care planning (Level C), symptom management (Level B), end of life care (Level C), carer support and training (Level C), and education for all professionals involved in the care of these patients and families (Good Practice Point). CONCLUSIONS: The care of patients with progressive neurological disease and their families continues to improve and develop. There is a pressing need for increased collaboration between neurology and palliative care.

Item Type: Article
Uncontrolled keywords: collaborative care; consensus; end of life; palliative care; progressive neurological disease
Subjects: H Social Sciences > H Social Sciences (General)
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Tizard
Depositing User: Jo Ruffels
Date Deposited: 01 Jun 2016 10:13 UTC
Last Modified: 14 Sep 2018 14:16 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/55752 (The current URI for this page, for reference purposes)
  • Depositors only (login required):


Downloads per month over past year