Experiences of patients with traumatic brain injury and their carers during transition from in-patient rehabilitation to the community: a qualitative study

Abrahamson, V. and Jensen, J. and Springett, K. and Sakel, M. (2016) Experiences of patients with traumatic brain injury and their carers during transition from in-patient rehabilitation to the community: a qualitative study. In: Committing to Excellence: A Celebration of Interdisciplinary Practice, 13 May 2016, East Kent Hospitals University NHS Foundation Trust. (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

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Abstract

Purpose: To explore the experiences of individuals who have had a severe TBI and their carers in the first month post-discharge from in-patient rehabilitation into living in the community. Method: Using a qualitative approach underpinned by critical realism we explored the narratives of ten patients and nine carers using semi-structured interviews approximately one month post-discharge. Thematic analysis was carried out independently by two researchers. Results: Firstly, perceptions of support were mixed but many patients and carers felt unsupported in the inpatient phase, during transitions between units and when preparing for discharge. Secondly, they struggled to accept a new reality of changed abilities, loss of roles and loss of autonomy. Thirdly, early experiences post-discharge exacerbated fears for the future. Conclusions: Most patients and carers struggled to identify a cohesive plan that supported their transition to living in the community. Access to services required much persistence on the part of carers and tended to be short-term and therefore did not meet their long term needs. We proposed the need for a case manager to be involved at an early stage of their rehabilitation and act as a key point for information and access to on-going rehabilitation and other support services.

Item Type: Conference or workshop item (Paper)
Subjects: H Social Sciences > HQ The family. Marriage. Woman
H Social Sciences > HV Social pathology. Social and public welfare > HV1568 Disability studies
R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Centre for Health Services Studies
Depositing User: Tony Rees
Date Deposited: 10 May 2016 10:17 UTC
Last Modified: 14 Nov 2018 15:24 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/55346 (The current URI for this page, for reference purposes)
Abrahamson, V.: https://orcid.org/0000-0002-1169-9457
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