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Service user involvement: Does it leave people standing on the side-lines? 13th World Congress IASSID

Forrester-Jones, Rachel, Hastings, S., Palmer, Ann P., Klein, Axel, Hewson, Simon, Jenkins, Linda M., Scott, E. (2008) Service user involvement: Does it leave people standing on the side-lines? 13th World Congress IASSID. In: Journal of Intellectual Disability Research. 52 (8-9). p. 702. Wiley (doi:10.1111/j.1365-2788.2008.01088.x) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

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Official URL
http://dx.doi.org/10.1111/j.1365-2788.2008.01088.x

Abstract

Aim: Service organizations and researchers have recently been encouraged to involve service users in all aspects of support services they receive and to be fully involved in the research process. A large social care organization commissioned us to develop a satisfaction survey which was designed developed and evaluated using service users. Method: Content analysis of service policy documents and telephone interviews with internal and external stakeholders was followed by interviews and focus groups with 39 staff and 94 service users who had intellectual disabilities, mental health or drug and alcohol problems. Transcribed data was subjected to thematic analysis and key questions across all data sources were computed and built into the questionnaire. Results: A questionnaire was produced with key service user questions on staff attitudes, individual care packages and the environment. However, the research team came up against many challenges in relation to involvement of service users with intellectual disabilities, tensions between what service users and management wanted in the survey and the commitment of the organization to follow through utilization of the questionnaire. Conclusions: We conclude by arguing that service user involvement may be another lip service exercise leaving service users on the side lines.

Item Type: Conference or workshop item (Paper)
DOI/Identification number: 10.1111/j.1365-2788.2008.01088.x
Subjects: H Social Sciences > HV Social pathology. Social and public welfare > HV1568 Disability studies
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Tizard
Depositing User: Rachel Forrester-Jones
Date Deposited: 03 Apr 2013 14:07 UTC
Last Modified: 26 Jun 2019 11:26 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/33506 (The current URI for this page, for reference purposes)
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