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Why should they go to the hospice? Carer attitudes to palliative care services

Forrester-Jones, Rachel, Oliver, David J., Duplock, L. (2008) Why should they go to the hospice? Carer attitudes to palliative care services. In: Journal of Intellectual Disability Research. 52 (8-9). p. 652. Wiley (doi:10.1111/j.1365-2788.2008.01083.x) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided) (KAR id:33504)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided. (Contact us about this Publication)
Official URL
http://dx.doi.org/10.1111/j.1365-2788.2008.01083.x

Abstract

Aim: Earlier research in Kent, UK showed that few referrals of people with ID were made to specialist palliative care providers even though this ageing population have increased health care needs including progressive diseases such as cancer, heart and respiratory disease and dementia. This study looked at the attitudes of ID carers to palliative care, the aim being to delineate whether such views are prohibiting the referral process.

Method: A series of focus groups were held with informal and formal carers of people with ID to ascertain their perceptions and attitudes of palliative care services.

Results: Initial results show that there is little understanding of palliative care services within ID services and there are concerns that ID clients will be admitted to the hospice, whereas the aim is to provide care in the most appropriate setting for both clients and carers.

Conclusions: Education of ID carers is necessary to increase understanding of palliative care services, so that care can be provided in a collaborative way, with the aim of improving the quality of life of ID clients with progressive disease.

Item Type: Conference or workshop item (Paper)
DOI/Identification number: 10.1111/j.1365-2788.2008.01083.x
Subjects: H Social Sciences > HV Social pathology. Social and public welfare > HV1568 Disability studies
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Depositing User: Rachel Forrester-Jones
Date Deposited: 03 Apr 2013 12:58 UTC
Last Modified: 16 Feb 2021 12:44 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/33504 (The current URI for this page, for reference purposes)
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