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Exploring similarities and differences in how researchers and young people understand key terms in youth mental-health research

Duara, Raginie, Pavlopoulou, Georgia, Hugh-Jones, Siobhan, Shaughnessy, Nicola, Herbert, Ruth, Baker, Sylvan, Williams, Emma, Sonuga-Barke, Edmund, Bhui, Kamaldeep, Mankee-Williams, Anna, and others. (2025) Exploring similarities and differences in how researchers and young people understand key terms in youth mental-health research. Humanities and Social Sciences Communications, 12 (1). Article Number 1521. ISSN 2662-9992. (doi:10.1057/s41599-025-05809-5) (KAR id:111445)

Abstract

A lack of a shared understanding of key terms is acknowledged as a significant barrier to interdisciplinary research. This paper examines the ways in which a broadly interdisciplinary team of academics and youth co-researchers involved in mental health research interpreted a number of research and mental health terms that are central to their work in order to understand conceptual differences in how different stakeholder groups approach these terms. Data was collected in four phases (interviews, written responses, and two participatory ‘living labs’) and was analysed using reflexive thematic analysis. Results revealed a wide disparity in the way participants understood key terms (including: ‘research’, ‘data’, ‘loneliness’, ‘safe space’ and ‘resilience’). Our study highlights the need for more inclusive approaches to mental health research, where diverse perspectives and lived experiences inform both methodology and practice from the outset. In conclusion we suggest a new framework (the EQUITY framework) as a tool to operationalise these findings.

Item Type: Article
DOI/Identification number: 10.1057/s41599-025-05809-5
Subjects: H Social Sciences
Institutional Unit: Schools > School of Arts and Architecture > Arts
Former Institutional Unit:
There are no former institutional units.
Funders: Arts and Humanities Research Council (https://ror.org/0505m1554)
Economic and Social Research Council (https://ror.org/03n0ht308)
Medical Research Council (https://ror.org/03x94j517)
SWORD Depositor: JISC Publications Router
Depositing User: JISC Publications Router
Date Deposited: 01 Oct 2025 10:12 UTC
Last Modified: 03 Oct 2025 15:02 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/111445 (The current URI for this page, for reference purposes)

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