Dementia Research Ethics Resources

This resource was developed following a DemComm Winter Residential School session in November 2023, titled ‘Navigating the Ethical Maze’, which built on a webinar delivered in August 2023 on ‘Ethics and dementia research’.

DemComm is a 2-year programme funded by the National Institute of Health and Care Research and the Alzheimer's Society. There are over 50 research fellows in the programme.

At the Winter School, DemComm fellows commented on a list of challenges, compiled during the webinar, and discussed potential solutions to these both in small groups and during an open discussion. The challenges and the solutions were mapped across the research cycle:

- Idea generation and proposal

- Recruitment (including consent and capacity assessment)

- Data collection/data access

- Data analysis

- Dissemination and engagement

- Patient and public involvement

This is a 'living document' and we are happy to receive ideas on what to add or change in the current version. As it is a short document, the list of resources is not exhaustive.