Keates, Nathan, Martin, Farradeh, Waldock, Krysia Emily (2024) Autistic people's perspectives on functioning labels and associated reasons, and community connectedness. Journal of autism and developmental disorders, . ISSN 1573-3432. (doi:10.1007/s10803-024-06316-3) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided) (KAR id:105507)
The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided. (Contact us about this Publication) | |
Official URL: https://doi.org/10.1007/s10803-024-06316-3 |
Abstract
Functioning labels have been used in relation to autistic people and differentiating between support needs. The main purpose of our study was to identify perspectives regarding language about being autistic. In regard to themselves and functioning. Furthermore, we investigated the influential factor of community connectedness on use of language acceptability and functioning labels.
516 autistic respondents completed our survey. We asked about demographic characteristics, how respondents would like autistic people to be termed in the survey, and their acceptability (person with autism, Aspergers, disorder, conditions, living with autism, autistic). We also asked about respondents? Autistic Community Connectedness, acknowledging the implicit nature of language and identity (Stets & Serpe in New directions in identity theory and research, Oxford University Press, 2016). The main focus of our survey was whether or not to use functioning labels, and the supporting rationale.
Qualitative study using Merleau-Ponty's hermeneutic phenomenology as a philosophical framework. Data collection took place between 2020 and 2021 in a southern Spanish province. A total of 22 in-depth interviews were conducted using open-ended questions until data saturation was reached.
97% of respondents stated that they find the term 'autistic' acceptable. Respondents who did see merit in using functioning labels to describe autistic people also reported not necessarily using them about themselves. Community membership was found to impact the participants' language preferences to describe the support needs of autistic people, including the use of functioning labels.
The proposed best option for language preferences is not to find consensus but instead, opt for the optimal choice that people find the least offensive or disagreeable. This means using identity-first language and not using functioning labels. [Abstract copyright: © 2024. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.]
Item Type: | Article |
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DOI/Identification number: | 10.1007/s10803-024-06316-3 |
Uncontrolled keywords: | identity-first language, functioning labels, autism, language, community |
Subjects: | H Social Sciences |
Divisions: | Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard |
Funders: | University of Kent (https://ror.org/00xkeyj56) |
SWORD Depositor: | JISC Publications Router |
Depositing User: | JISC Publications Router |
Date Deposited: | 08 Apr 2024 15:00 UTC |
Last Modified: | 09 Apr 2024 08:06 UTC |
Resource URI: | https://kar.kent.ac.uk/id/eprint/105507 (The current URI for this page, for reference purposes) |
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