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Neighbourhood deprivation and access to early intervention and support for families of children with intellectual and developmental disabilities

Laxton, Sophie, Moriarty, Caitlin, Sapiets, Suzi J., Hastings, Richard P., Totsika, Vasiliki (2024) Neighbourhood deprivation and access to early intervention and support for families of children with intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 21 (2). ISSN 1741-1122. E-ISSN 1741-1130. (doi:10.1111/jppi.12486) (KAR id:104911)

Abstract

Ensuring families of children with intellectual and/or developmental disabilities (e.g., developmental delay, intellectual disability, autism) can access early intervention and support is important. Current research indicates there are family‐level socioeconomic disparities of access to early intervention and support, however, there is limited evidence on the relationship between neighbourhood‐level socioeconomic deprivation and access to support. Therefore, the aim of this study was to examine the relationship between neighbourhood deprivation and families' access to and unmet need for early intervention and support. We collected cross‐sectional data using a survey of 673 parental caregivers of young children with suspected or diagnosed intellectual and/or developmental disabilities in the UK. Multiple regression models were fitted for three early intervention and support outcome variables: access to early intervention; access to services across education, health, social care, and other sectors; and unmet need for services. Each regression model included a neighbourhood deprivation variable based on the Index of Multiple Deprivation and five control variables: family‐level economic deprivation, country, caregivers' educational level, developmental disability diagnosis, and informal support sources. Neighbourhood deprivation was a significant independent predictor of access to services, but neighbourhood deprivation was not a significant predictor of access to early intervention or unmet need for services. Families living in the most deprived neighbourhoods accessed fewer services than other families. Socioeconomic disparities of access to early intervention and support, at both a neighbourhood and family level, exist for families of young children with suspected or diagnosed intellectual and/or developmental disabilities in the UK. Future research should focus on policy and other interventions aimed at addressing socioeconomic disparities at the neighbourhood and family level, to ensure equitable access to early intervention and support.

Item Type: Article
DOI/Identification number: 10.1111/jppi.12486
Uncontrolled keywords: autism; early support; economic deprivation; intellectual disability; policy
Subjects: H Social Sciences
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Funders: University of Kent (https://ror.org/00xkeyj56)
University of Warwick (https://ror.org/01a77tt86)
SWORD Depositor: JISC Publications Router
Depositing User: JISC Publications Router
Date Deposited: 08 Feb 2024 12:31 UTC
Last Modified: 22 Mar 2024 14:38 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/104911 (The current URI for this page, for reference purposes)

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