McDonagh, Lorraine K., Blomquist, Paula, Wayal, Sonali, Cochrane, Sarah, Calliste, Josina, Cassell, Jackie A., Edelman, Natalie Lois (2019) Collaborative and consultative patient and public involvement in sexual health research: lessons learnt from four case studies. Sexually Transmitted Infections, 96 (2). pp. 96-100. ISSN 1368-4973. E-ISSN 1472-3263. (doi:10.1136/sextrans-2018-053922) (KAR id:103734)
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Official URL: https://doi.org/10.1136%2Fsextrans-2018-053922 |
Abstract
Objectives: Patient and Public Involvement (PPI) is increasingly mandated in health research. However, there is little guidance on conducting PPI for research on episodic infections, risk factors, hard-to-reach populations, or stigmatised behaviours. The aim of this paper is to address the gap in PPI guidance by illustrating different approaches to challenging PPI scenarios. Methods: Four case studies of sexual health research PPI, each of which discusses three stages of PPI (defining, accessing and engaging with lay advisors). Results: Researchers may need to use broadly define lay advisors; involving those with insight into population of interest can be beneficial. Alternative and multiple routes to access patients/public should be considered. Flexible means of engagement can enable lay advisors to contribute anonymously, remotely and/or opportunistically. Conclusions: Case studies may help researchers in sexual health (and other fields) to better meet the challenges of PPI for studies which concern hard-to-reach populations, episodic infections, risk factors, and stigmatised behaviours.
Item Type: | Article |
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DOI/Identification number: | 10.1136/sextrans-2018-053922 |
Additional information: | This paper is an independent research by the National Institute for Health Research. The research is funded by the National Institute for Health Research Health Protection Research Unit (NIHR HPRU) in Blood Borne and Sexually Transmitted Infections at University College London, in partnership with Public Health England and in collaboration with the London School of Hygiene and Tropical Medicine (grant number: HPRU-2012-10023). Case study 4 presents independent research commissioned by the NIHR, under the Research for Patient Benefit Programme (PB-PG-0407-13149). |
Subjects: | H Social Sciences |
Divisions: | Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Centre for Health Services Studies |
Funders: | National Institute for Health Research (https://ror.org/0187kwz08) |
Depositing User: | Milly Massoura |
Date Deposited: | 28 Nov 2023 15:00 UTC |
Last Modified: | 05 Nov 2024 13:09 UTC |
Resource URI: | https://kar.kent.ac.uk/id/eprint/103734 (The current URI for this page, for reference purposes) |
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