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Commoning Genomic Solidarity to Improve Global Health Equality

Zhang, Joy Yueyue (2023) Commoning Genomic Solidarity to Improve Global Health Equality. Cell Genomics, 3 (10). Article Number 100405. E-ISSN 2666-979X. (doi:10.1016/j.xgen.2023.100405) (KAR id:102533)

Abstract

This article underlines two key asynchronies between prevailing governing logic and expanding practices in somatic human genome editing that are hindering an effective and orderly translation of the new technology into pubic good. The first is a ‘genomic sovereignty’ framing adopted by a number of non-Western countries which may exacerbate data-biases in global research and directs policy attention away from the necessary structural changes required to achieve non-discriminatory and equitable genomic healthcare. The other is a global deficiency in attending to ‘science at large’: the challenge of regulating new assemblages of societal interests that advocate controversial or experimental research, often outside of conventional institutions and aided by ‘policy shopping’. Both issues point to the fact that genomic research does not represent a well-defined scientific commons, but rather a domain that requires active ‘commoning’, with the aim of fostering genomic solidarity that coordinates responsible research within and across national boundaries.

Item Type: Article
DOI/Identification number: 10.1016/j.xgen.2023.100405
Uncontrolled keywords: Gene therapy, sovereignty, solidarity, Global South, health equality, governance, private venture, commoning, commons
Subjects: H Social Sciences
H Social Sciences > HM Sociology
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research
Funders: University of Kent (https://ror.org/00xkeyj56)
Depositing User: Joy Y Zhang
Date Deposited: 22 Aug 2023 18:08 UTC
Last Modified: 05 Nov 2024 13:08 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/102533 (The current URI for this page, for reference purposes)

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