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Combating the “Silent Crisis” of the Donation Gap with “Polyphonic Relatedness”

Shepherd, Jill L, Zhang, Joy Yueyue (2023) Combating the “Silent Crisis” of the Donation Gap with “Polyphonic Relatedness”. Asian Biotechnology and Development Review, 25 (1-2). pp. 57-67. (KAR id:102530)

Abstract

The UK has been a global leader in the development and regulation of biobanks and bio-databases that facilitate clinical and laboratory access to tissue, blood samples, DNA and data. Yet the persistent barrier to mobilise non- White communities into actively contributing to and, subsequently benefiting from structural and scientific advantages that the UK can offer constitutes a ‘Silent Crisis’. This paper builds on ongoing research on stem cell donations carried out by the authors in the UK. We underline the centrality of the concept of ‘relatedness’ in donor recruitment, and the tricky role it has played, both as a uniting and an alienating force within and between different ethnic communities. We argue that the building of a thick societal relatedness or what we term as ‘polyphonic relatedness’ offers a constructive guidance to overcome the racial disparity in biomaterial donations.

Item Type: Article
Subjects: H Social Sciences
H Social Sciences > HM Sociology
H Social Sciences > HN Social history and conditions. Social problems. Social reform
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research
Funders: University of Kent (https://ror.org/00xkeyj56)
Depositing User: Joy Y Zhang
Date Deposited: 22 Aug 2023 17:51 UTC
Last Modified: 11 Jan 2024 11:24 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/102530 (The current URI for this page, for reference purposes)

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