Phase 1 Research Report on the IMPRESS Health 2 (Interreg IVA Channel Programme) Project 4282: Understanding the factors behind the late testing and diagnosis of HIV

This report outlines Phase 1 data from an EU Interreg IVA Channel Programme funded research project (Number 4282) conducted to understand factors behind the late testing and diagnosis of HIV in Kent and Medway (UK). The views of patients or service users (n=37) and health care professionals (n=16) on the barriers to early HIV testing and diagnosis were elicited in a series of semi-structured interviews across three organisations providing HIV testing in Kent and Medway between January and March 2014. A retrospective analysis of all patients diagnosed with HIV between January 2008 and December 2013 (n=242) in those centres was also conducted to identify the proportion of early and late presenters in each organisation and identify any correlating factors which may have impacted upon an individual's likelihood of being diagnosed late (i.e. with a CD4 count <350). Chief among the recommendations for a Phase 2 intervention study were the need for improved education and training of healthcare staff (particularly in primary care) to elicit individual's concerns about HIV risk and address stereotypical ideas that it is a condition which predominantly affects men who have sex with men or particular immigrant populations. The data showed that white heterosexuals, and in particular, white women were at particular risk of having their HIV diagnosed late in the region. The second recommendation for immediate action was the need for a concerted social media and public health campaign aimed at 'atypical' HIV patient groups in order to raise awareness of HIV transmission risk and the benefits of early testing and diagnosis.