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Family carers of adults with profound and multiple learning disabilities and the COVID-19 pandemic: Results from a UK-wide survey

Bradshaw, J., Flynn, S., Gilloooly, A., Maguire, R., Hatton, Chris, Hastings, Richard P. (2022) Family carers of adults with profound and multiple learning disabilities and the COVID-19 pandemic: Results from a UK-wide survey. In: IASSIDD International Conference: The power of families of persons with profound intellectual and multiple disabilities. . (In press) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided) (KAR id:93484)

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Abstract

Aim: Experiences of UK carers of adults with PMLD during the Covid-19 pandemic were explored. Method: Carers of adults with PMLD were invited to take part in three surveys over 12-months. Family carers had input in to the survey design and the interpretation of the results. Findings: Most people (60%) with PMLD lived with family. Over a fifth of people were shielding in the final wave of data collection. Over half (56%) of people with PMLD were getting less support now than before the pandemic with around half of these having been informed about these changes. Most people with PMLD (63%) had NOT been doing service-supported community activities in the last four weeks before the survey. Nearly half of people with PMLD were reported to be paying for services that they were not receiving. Carers reported that their health and wellbeing had been affected by their health and wellbeing. Conclusion/Application: Life during the pandemic has been particularly difficult for people with PMLD and their carers. When asked what would be needed to make a future lockdown easier, the most common responses were support to keep active (64%), support to keep busy (53%) and knowing support workers were vaccinated (53%).

Item Type: Conference or workshop item (Paper)
Uncontrolled keywords: Profound and Multiple Learning Disabilities; Covid-19
Subjects: B Philosophy. Psychology. Religion
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Depositing User: Jill Bradshaw
Date Deposited: 06 Mar 2022 16:09 UTC
Last Modified: 20 Jun 2023 11:19 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/93484 (The current URI for this page, for reference purposes)

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