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Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles

Burton, Jennifer, Wolters, Arne, Towers, Ann-Marie, Jones, Liz, Meyer, Julienne, Gordon, Adam, Irvine, Lisa, Hanratty, Barbara, Spilsbury, Karen, Peryer, Guy, and others. (2022) Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles. The Lancet Healthy Longevity, 3 (3). e186-e193. E-ISSN 2666-7568. (doi:10.1016/S2666-7568(22)00010-1) (KAR id:92703)

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Abstract

Reforms to social-care in response to the COVID-19 pandemic, in the UK and internationally, place data at the heart of proposed innovations and solutions. The principles are not well established of what constitutes core, or minimum, data to support care home residents. Often, what is included, privileges data on resident health over day-to-day care priorities and quality of life. This Personal View argues for evidence-based principles to base the development of a UK minimum data set (MDS) for care homes. Co-produced work involving care home staff and older people working with stakeholders is required to define and agree the format, content, structure and operationalisation. Implementation decisions will determine the success of an MDS, impacting aspects including data quality, completeness, and useability. Care home staff who collect the data need to benefit from the MDS and see value in their contribution and residents must derive benefit from data collection and synthesis.

Item Type: Article
DOI/Identification number: 10.1016/S2666-7568(22)00010-1
Subjects: G Geography. Anthropology. Recreation
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Personal Social Services Research Unit
Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Centre for Health Services Studies
Depositing User: Ann-Marie Towers
Date Deposited: 14 Jan 2022 18:19 UTC
Last Modified: 21 Mar 2022 14:01 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/92703 (The current URI for this page, for reference purposes)
Burton, Jennifer: https://orcid.org/0000-0002-4752-6988
Towers, Ann-Marie: https://orcid.org/0000-0003-3597-1061
Rand, Stacey: https://orcid.org/0000-0001-9071-2842
Allan, Stephen: https://orcid.org/0000-0002-1208-9837
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