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Quality of Life measurements tools for people with dementia and Intellectual Disabilities: A systematic review

Tsang, Winnie, Oliver, David J., Triantafyllopoulou, Paraskevi (2022) Quality of Life measurements tools for people with dementia and Intellectual Disabilities: A systematic review. Journal of Applied Research in Intellectual Disabilities, 36 (1). pp. 28-38. ISSN 1360-2322. E-ISSN 1468-3148. (doi:10.1111/jar.13050) (KAR id:91952)



Adults with intellectual disabilities are an at-risk group of developing dementia. In the absence of a cure for dementia, emphasis on treatment is the promotion of Quality of life (QoL). The aim of this review is to identify and describe QoL tools for people with intellectual disabilities and dementia.


A systematic review was carried out using 10 databases and papers from up to March year 2021.


Two instruments were identified and examined. The QoL in late-stage dementia, which showed evidence of good levels of internal consistency, intra-rater reliability, test–retest reliability, and convergent validity. The Dementia Quality of Life – proxy was also used; however, its psychometric properties have yet to be studied within the intellectual disabilities population.


It is recommended instruments should be developed and psychometrically tested specifically for adults with intellectual disabilities and dementia to help inform policy makers, measure outcomes of interventions and personal outcomes.

Item Type: Article
DOI/Identification number: 10.1111/jar.13050
Uncontrolled keywords: systematic review, Intellectual Disabilities, dementia, Down’s Syndrome, quality of life
Subjects: H Social Sciences
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Funders: University of Kent (
Depositing User: Paraskevi Triantafyllopoulou
Date Deposited: 02 Dec 2021 20:49 UTC
Last Modified: 10 Feb 2023 16:00 UTC
Resource URI: (The current URI for this page, for reference purposes)

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