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Caregivers as researchers: an evaluation of early positive approaches to support (E-PAtS) in partnership with family caregiver co-researchers

Gore, N., Bradshaw, J. (2019) Caregivers as researchers: an evaluation of early positive approaches to support (E-PAtS) in partnership with family caregiver co-researchers. In: Journal of Intellectual Disability Research. 63 (7). p. 740. Wiley (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided) (KAR id:91821)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided. (Contact us about this Publication)
Official URL:
https://onlinelibrary.wiley.com/doi/epdf/10.1111/j...

Abstract

Introduction: E-PAtS is a co-produced and co-facilitated group programme to support caregiver wellbeing and positive development for children with intellectual/developmental disabilities. E-PAtS has previously been evaluated in traditional ways. This study, explored the process and benefits of training three caregivers as co-researchers in the evaluation of E-PAtS.

Methods: Three caregivers were invited to serve as co researchers and provided with training/supervision. Co-researchers gathered baseline and follow-up data by supporting families who attended E-PAtS to complete questionnaires and conducted follow up interviews with a subset of families. All co-researchers were later interviewed to explore their own experiences of serving in this role.

Results: Findings from this study are three-fold and cover: quantitative analysis of pre and post-questionnaire data from 6 EPAtS groups; a thematic analysis of these groups and a thematic analysis of interviews with co-researchers themselves. Findings from both the qualitative and quantitative aspects of this work will be presented.

Implications: Partnering with caregivers in the evaluation of E-PAtS helped produce rich and meaningful data that had advantages beyond traditional methods. Co-researchers reported multiple positive experiences relating to their role. The co-researcher model therefore has

good potential to enhance both research and caregiver empowerment in the field.

Item Type: Conference or workshop item (Paper)
Uncontrolled keywords: family carers; early intervention; co-production; wellbeing
Subjects: B Philosophy. Psychology. Religion > BF Psychology
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Depositing User: Jill Bradshaw
Date Deposited: 30 Nov 2021 17:24 UTC
Last Modified: 01 Dec 2021 10:26 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/91821 (The current URI for this page, for reference purposes)

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