Garcia Martinez, Marian, Daleske, Carlos Bezos, Benítez León, Áurea, Rodelgo, Simón Moisés Lalanza, Espinosa, Raquel Orive, López, Patricia Rubio, de Hoyos Aragoneses, Vega (2022) Empowering patients to co-design Covid-19 responses: The role of online health communities. R&D Management, 52 (2). pp. 391-406. ISSN 0033-6807. E-ISSN 1467-9310. (doi:10.1111/radm.12516) (KAR id:91577)
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Official URL: https://doi.org/10.1111/radm.12516 |
Abstract
Covid-19 has paved the way for major disruptions to conventional healthcare systems accelerating participatory health enabled by interactive virtual environments. The role of the ‘patient voice’ as a fundamental resource in an effective Covid-19 response has moved centre stage. In this time of extraordinary crisis and health system disruptions, patient-centred models offer opportunities for embedding shared decision-making to improve health outcomes using digital tools. Through an exploratory case study, this paper examines patient action during Covid-19 and how co-design methods can be adapted to an online environment in response to Covid-19 restrictions to improve the Covid-19 patient and family experience of care. Experienced-based co-design was employed to map the care journey of patients with Covid-19 confined at home in Spain - one of the hardest-hit countries in the pandemic, to identify quality improvements. Main touchpoint needs were explored in online co-design workshops leading to improvement projects including the development of a Covid-19 patient online health community (OHC) to deliver patient-centred care during the outbreak. The Covid-19 patient OHC has become an instrument that facilitates Covid-19 patient’s recovery, especially psychological resilience. OHC participation has clear potential for empowerment and transformative agency as it enables Covid-19 patients to control the content and flow of the information available to them. This paper offers valuable insights on how co-design can be adapted to an online format to enable more meaningful patient input to healthcare design when faced with uncertainty and ambiguity during health crises.
Item Type: | Article |
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DOI/Identification number: | 10.1111/radm.12516 |
Uncontrolled keywords: | Covid-19; participatory health; patient voice; co-design; patient empowerment; Online Health Communities; patient journey map; experienced-based co-design |
Subjects: | H Social Sciences |
Divisions: | Divisions > Kent Business School - Division > Department of Marketing, Entrepreneurship and International Business |
Depositing User: | Marian Garcia |
Date Deposited: | 15 Nov 2021 11:54 UTC |
Last Modified: | 23 Dec 2023 00:00 UTC |
Resource URI: | https://kar.kent.ac.uk/id/eprint/91577 (The current URI for this page, for reference purposes) |
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