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Paid carers' understanding and experiences of meaningful involvement in bereavement for people with intellectual disability when a significant other is dying

Hedayioglu, Julie, Marsden, Sue, Sackree, Amy, Oliver, David (2021) Paid carers' understanding and experiences of meaningful involvement in bereavement for people with intellectual disability when a significant other is dying. Journal of Applied Research in Intellectual Disabilities, . ISSN 1360-2322. E-ISSN 1468-3148. (doi:10.1111/jar.12929) (KAR id:89175)

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Official URL:
http://doi.org/10.1111/jar.12929

Abstract

Background: Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance.

Objective: To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process.

Methods: Semi-structured interviews were conducted with paid carers working across two residential homes.

Results: Four themes were identified: (a) challenges in having conversations about death and dying; (b) meaningful involvement of residents in the bereavement process; (c) the relationship between paid carers and residents (including the impact of a resident's death on paid carers); and (d) the support needs of paid carers.

Conclusions: The recommendations from previous research of meaningfully involving people with intellectual disabilities in the bereavement process have not filtered fully into practice. Paid carers still highlight the need for specialist support and advice to help them discuss and increase involvement in death and dying.

Item Type: Article
DOI/Identification number: 10.1111/jar.12929
Uncontrolled keywords: bereavement; death; dying; intellectual disabilities; meaningful involvement; staff support; training
Subjects: H Social Sciences > HV Social pathology. Social and public welfare > HV3008 People with mental disabilities
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Centre for Health Services Studies
Depositing User: Helen Wooldridge
Date Deposited: 12 Jul 2021 16:28 UTC
Last Modified: 26 Dec 2021 23:10 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/89175 (The current URI for this page, for reference purposes)
Hedayioglu, Julie: https://orcid.org/0000-0002-9805-7421
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