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Optimum Hospice at Home Services for End-of-Life care: realist evaluation and co-production

Abrahamson, Vanessa, Butler, Claire, Wilson, Patricia M., Mikelyte, Rasa, Brigden, Charlotte L., Silsbury, Graham, Goodwin, Mary (2019) Optimum Hospice at Home Services for End-of-Life care: realist evaluation and co-production. In: Optimum Hospice at Home Services for End-of-Life care: realist evaluation and co-production. . (KAR id:87301)

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Abstract

Overview:

The co-applicants initially participated in clearly delineated tasks such as commenting on patient/carer resources. At the end of phase 1, they requested greater involvement, which translated into participating in data analysis. Additional training in realist philosophy and data analysis was provided. The co-applicants attended team coding meetings. Preparation included listening to and reading carer interviews, and coded according to provisional CMOs. Co-applicants fed back at coding meetings as part of the iterative process of refining CMOs. They provided a fresh perspective on the data, reflecting on the underlying narrative that proved invaluable in helping researchers to step back from the minutiae of coding and consider the carer’s perspective.

Implications:

Public members as an integral part of a realist research team add a different lens to interrogating CMO configurations, enhancing rigour in developing programme theories. While the process evolved overtime, we would recommend early discussions around what activities co-applicants would like to participate in, training requirements, time commitment and emotional demands.

Item Type: Conference or workshop item (Speech)
Uncontrolled keywords: co-production, end of life, realist evaluation
Subjects: H Social Sciences > H Social Sciences (General)
R Medicine > R Medicine (General)
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Centre for Health Services Studies
Depositing User: Vanessa Abrahamson
Date Deposited: 24 Mar 2021 16:44 UTC
Last Modified: 25 Mar 2021 15:10 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/87301 (The current URI for this page, for reference purposes)
Abrahamson, Vanessa: https://orcid.org/0000-0002-1169-9457
Butler, Claire: https://orcid.org/0000-0001-9501-2861
Wilson, Patricia M.: https://orcid.org/0000-0002-5787-9736
Mikelyte, Rasa: https://orcid.org/0000-0002-2772-8240
Brigden, Charlotte L.: https://orcid.org/0000-0003-4917-4338
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