Skip to main content

Muscle strengthening intervention for boys with haemophilia: developing and evaluating a best-practice exercise programme with boys, families and healthcare professionals

Hashem, Ferhana, Stephensen, David, Drechsler, Wendy, Bladen, Melanie, Carroll, Liz, Pellatt-Higgins, Tracy, Saloniki, Eirini-Christina (2020) Muscle strengthening intervention for boys with haemophilia: developing and evaluating a best-practice exercise programme with boys, families and healthcare professionals. Health Expectations, . ISSN 1369-6513. E-ISSN 1369-7625. (doi:10.1111/hex.13119) (KAR id:82170)

PDF Publisher pdf
Language: English


Download (705kB) Preview
[thumbnail of Health Expectation article 17 Aug 2020.pdf]
Preview
This file may not be suitable for users of assistive technology.
Request an accessible format
PDF Author's Accepted Manuscript
Language: English

Restricted to Repository staff only
Contact us about this Publication
[thumbnail of Muscle strengthening intervention for boys with haemophilia.pdf]
XML Word Processing Document (DOCX) Author's Accepted Manuscript
Language: English

Restricted to Repository staff only
Contact us about this Publication
[thumbnail of Muscle strenthening intervention for boys with haemophilia.docx]
Official URL
https://doi.org/10.1111/hex.13119

Abstract

Background: Muscle strengthening exercises have the potential to improve outcomes for boys with haemophilia, but it is unclear what types of exercise might be of benefit. We elicited the views of healthcare professionals, boys and their families to create and assess a home-based muscle strengthening programme. Objective: To design and develop a muscle strengthening programme with healthcare professionals aimed at improving musculoskeletal health, and refine the intervention by engaging boys with haemophilia and their families (Study 1). Following delivery, qualitatively evaluate the feasibility and acceptability of the exercise programme with the boys and the study’s physiotherapists (Study 2). Design: A person-based approach was used for planning and designing the exercise programme, and evaluating it post-delivery. The following methods were utilised: modified Nominal Group Technique (NGT) with healthcare professionals; focus group with families; exit interviews with boys; and interviews with the study’s physiotherapists. Results: Themes identified to design and develop the intervention included: exercises to lower limb and foot, dosage, age accommodating, location, supervision and monitoring and incentivisation. Programme refinements were carried following engagement with the boys and families who commented on: dosage, location, supervision and incentivisation. Following delivery, the boys and physiotherapists commented on progression and adaptation, physiotherapist contact, goal-setting, creating routines and identifying suitable timeframes, and a repeated theme of incentivisation. Conclusions: An exercise intervention was designed and refined through engagement with boys and their families. Boys and physiotherapists involved in the intervention’s delivery were consulted who found the exercises to be generally acceptable with some minor refinements necessary.

Item Type: Article
DOI/Identification number: 10.1111/hex.13119
Uncontrolled keywords: Boys, Haemophilia, Muscle strength, Exercise, Physiotherapy, Life experience, Patient adherence
Subjects: R Medicine
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Centre for Health Services Studies
Depositing User: Ferhana Hashem
Date Deposited: 21 Jul 2020 09:15 UTC
Last Modified: 29 Oct 2021 14:33 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/82170 (The current URI for this page, for reference purposes)
Hashem, Ferhana: https://orcid.org/0000-0002-2544-1350
Pellatt-Higgins, Tracy: https://orcid.org/0000-0002-2543-461X
Saloniki, Eirini-Christina: https://orcid.org/0000-0002-5867-2702
  • Depositors only (login required):