Skip to main content

Measuring the nature and duration of symptoms of cervical cancer in young women: Developing an interview-based approach

Lim, Anita W.W., Forbes, Lindsay J.L., Rosenthal, Adam N., Raju, Kantipati S., Ramirez, Amanda-Jane (2013) Measuring the nature and duration of symptoms of cervical cancer in young women: Developing an interview-based approach. BMC Women's Health, 13 . ISSN 1472-6874. (doi:10.1186/1472-6874-13-45) (KAR id:77975)

PDF Publisher pdf
Language: English
Download (517kB) Preview
[thumbnail of Measuring the nature and duration of symptoms of cervical cancer in young women Developing an interview-based approach.pdf]
Preview
This file may not be suitable for users of assistive technology.
Request an accessible format
Official URL
http://dx.doi.org/10.1186/1472-6874-13-45

Abstract

Background: Some young women experience delays in diagnosis of cervical cancer, but little research about ways of studying these delays has been published. A major challenge is that gynaecological symptoms are common in young women, but cervical cancer is rare. This study describes the development and testing of a measure for studying delays in diagnosis in young women with cervical cancer.

Methods: Prospective development of an interview measure and testing of its ability to reliably and systematically collect relevant data in two large hospitals in London, UK using 27 women aged 18–40 diagnosed with cervical cancer in the previous two years. We developed a semi-structured interview schedule and data extraction form to systematically collect data on symptoms (including nature and duration) and risk factors for delayed diagnosis from young women with cervical cancer. We piloted the measure among young women with cervical cancer (audiorecording it with their permission), refining it iteratively. To complete the measure, we developed a database for managing the data and a manual for using the schedule. Two researchers extracted data from the recorded interviews to assess inter-rater reliability.

Results: The final interview schedule yielded quantitative data on the nature and duration of symptoms and risk factors for delayed diagnosis. Inter-rater reliability was high. In the pilot, 12 of the 27 women were diagnosed via symptomatic presentation. Median time from the symptom triggering presentation to presentation was one month (interquartile range 0–4 months). Median time from presentation to diagnosis was three months (interquartile range 1–8.5 months).

Conclusions: We have developed a reliable tool for measuring the nature and duration of symptoms in young women with cervical cancer. Pilot data suggest that a substantial proportion of women experience delay between first presentation and diagnosis.

Item Type: Article
DOI/Identification number: 10.1186/1472-6874-13-45
Additional information: Unmapped bibliographic data: C7 - 45 [EPrints field already has value set] DB - Scopus [Field not mapped to EPrints] M3 - Article [Field not mapped to EPrints]
Uncontrolled keywords: cervical cancer; early diagnosis; symptoms
Subjects: R Medicine > RC Internal medicine > RC254 Neoplasms. Tumors. Oncology
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Centre for Health Services Studies
Depositing User: Lindsay Forbes
Date Deposited: 28 Oct 2019 11:10 UTC
Last Modified: 16 Feb 2021 14:09 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/77975 (The current URI for this page, for reference purposes)
Forbes, Lindsay J.L.: https://orcid.org/0000-0002-4654-9520
  • Depositors only (login required):

Downloads

Downloads per month over past year