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An international measure of awareness and beliefs about cancer: Development and testing of the ABC

Simon, Alice E., Forbes, Lindsay J.L., Boniface, David, Warburton, Fiona, Brain, Kate E., Dessaix, Anita, Donnelly, Michael, Haynes, Kerry, Hvidberg, Line, Lagerlund, Magdalena, and others. (2012) An international measure of awareness and beliefs about cancer: Development and testing of the ABC. BMJ Open, 2 . (doi:10.1136/bmjopen-2012-001758) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided) (KAR id:77972)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided. (Contact us about this Publication)
Official URL
http://dx.doi.org/10.1136/bmjopen-2012-001758

Abstract

Objectives: To develop an internationally validated measure of cancer awareness and beliefs; the awareness and beliefs about cancer (ABC) measure.

Design and setting: Items modified from existing measures were assessed by a working group in six countries (Australia, Canada, Denmark, Norway, Sweden and the UK). Validation studies were completed in the UK, and cross-sectional surveys of the general population were carried out in the six participating countries.

Participants: Testing in UK English included cognitive interviewing for face validity (N=10), calculation of content validity indexes (six assessors), and assessment of test–retest reliability (N=97). Conceptual and cultural equivalence of modified (Canadian and Australian) and translated (Danish, Norwegian, Swedish and Canadian French) ABC versions were tested quantitatively for equivalence of meaning (≥4 assessors per country) and in bilingual cognitive interviews (three interviews per translation). Response patterns were assessed in surveys of adults aged 50+ years (N≥2000) in each country.

Main outcomes: Psychometric properties were evaluated through tests of validity and reliability, conceptual and cultural equivalence and systematic item analysis. Test–retest reliability used weighted-κ and intraclass correlations. Construction and validation of aggregate scores was by factor analysis for (1) beliefs about cancer outcomes, (2) beliefs about barriers to symptomatic presentation, and item summation for (3) awareness of cancer symptoms and (4) awareness of cancer risk factors.

Results: The English ABC had acceptable test–retest reliability and content validity. International assessments of equivalence identified a small number of items where wording needed adjustment. Survey response patterns showed that items performed well in terms of difficulty and discrimination across countries except for awareness of cancer outcomes in Australia. Aggregate scores had consistent factor structures across countries.

Conclusions: The ABC is a reliable and valid international measure of cancer awareness and beliefs. The methods used to validate and harmonise the ABC may serve as a methodological guide in international survey research.

Item Type: Article
DOI/Identification number: 10.1136/bmjopen-2012-001758
Additional information: Unmapped bibliographic data: C7 - e001758 [EPrints field already has value set] DB - Scopus [Field not mapped to EPrints] M3 - Article [Field not mapped to EPrints]
Subjects: R Medicine > RC Internal medicine > RC254 Neoplasms. Tumors. Oncology
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Centre for Health Services Studies
Depositing User: Lindsay Forbes
Date Deposited: 28 Oct 2019 13:38 UTC
Last Modified: 16 Feb 2021 14:09 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/77972 (The current URI for this page, for reference purposes)
Forbes, Lindsay J.L.: https://orcid.org/0000-0002-4654-9520
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