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Carer social care-related quality of life outcomes: estimating English preference weights for the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer)

Batchelder, Laurie, Malley, Juliette, Burge, Peter, Lu, Hui, Saloniki, Eirini-Christina, Linnosmaa, Ismo, Trukeschitz, Birgit, Forder, Julien E. (2019) Carer social care-related quality of life outcomes: estimating English preference weights for the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer). Value in Health, 22 (12). pp. 1427-1440. ISSN 1098-3015. (doi:10.1016/j.jval.2019.07.014) (KAR id:75662)

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Abstract

Objective: To estimate preference-based index values for the English version of the ASCOT-Carer, a measure assessing social care-related quality of life (SCRQoL) in informal carers, from the general population in England.

Methods: The ASCOT-Carer consists of seven domains, each reflecting aspects of SCRQoL in informal carers. Preferences for the ASCOT-Carer SCRQoL states were estimated using a Best-Worst Scaling exercise (BWS) in an online survey. The survey was administered to a sample of the general adult population in England (n=1,000). Participants were asked to put themselves into the hypothetical state of being an informal carer and indicate which attribute they thought was the best (first and second) and worst (first and second) from a profile list of seven attributes reflecting the seven domains, each ranging at a different level (1-4). Multinomial logistic regression was used to analyse the data and estimate preference weights for the ASCOT-Carer measure.

Results: The most valued aspect by English participants was the ‘occupation’ attribute at its highest level. Results further showed participants rated having ‘no control over their daily life’ as the lowest attribute-level of all those presented. The position of the seven attributes influenced participants’ best and worst choices, and there was evidence of both scale and taste heterogeneity on preferences.

Conclusions: This study has established a set of preference-based index values for the ASCOT-Carer in England derived from the BWS exercise that can be used for economic evaluation of interventions on older individuals and their informal carers.

Item Type: Article
DOI/Identification number: 10.1016/j.jval.2019.07.014
Uncontrolled keywords: preferences; Best-Worst scaling; informal care; ASCOT questionnaire
Subjects: H Social Sciences
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Personal Social Services Research Unit
Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Centre for Health Services Studies
Depositing User: Eirini Saloniki
Date Deposited: 02 Aug 2019 14:59 UTC
Last Modified: 17 Jan 2020 17:02 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/75662 (The current URI for this page, for reference purposes)
Malley, Juliette: https://orcid.org/0000-0001-5759-1647
Saloniki, Eirini-Christina: https://orcid.org/0000-0002-5867-2702
Forder, Julien E.: https://orcid.org/0000-0001-7793-4328
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