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"Still Out in the Cold" - Self-advocacy and the Disabled People's Movement

Petri, Gabor (2018) "Still Out in the Cold" - Self-advocacy and the Disabled People's Movement. Doctor of Philosophy (PhD) thesis, University of Kent, Tizard Centre.


The disabled people's movement has been successful in shaping public policies. Today, disabled people lead and control their representative organisations, with the notable exception of autistic people and people with a learning disability who are still often represented by parents and professionals. This thesis used empirical data from two countries, the UK and Hungary to explore the position of self-advocates in the disability movement and identify factors that help or hinder self-advocacy. Several hindering factors were identified, including economic barriers, rules employed by disability organisations and lack of support to self-advocates. Supporting factors include the internet, the community of autistic people and human rights policies. The study found evidence that disability organisations include self-advocates only in tokenistic ways in their processes The thesis also offers a descriptive Pathways Model and a new, practice theory-based definition to self-advocacy.

Item Type: Thesis (Doctor of Philosophy (PhD))
Thesis advisor: Beadle-Brown, Julie
Thesis advisor: Bradshaw, Jill
Uncontrolled keywords: self-advocacy, autism, learning disability, intellectual disability, disability movement, human rights, disability studies, practice theory
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research
SWORD Depositor: System Moodle
Depositing User: System Moodle
Date Deposited: 17 Jul 2019 10:10 UTC
Last Modified: 06 Feb 2020 04:19 UTC
Resource URI: (The current URI for this page, for reference purposes)
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