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Understanding what works, why and in what circumstances in Hospice at Home Services for End of Life Care: applying a realist logic of analysis to a systematically searched literature review

Hashem, Ferhana, Brigden, Charlotte L., Wilson, Patricia M., Butler, Claire (2020) Understanding what works, why and in what circumstances in Hospice at Home Services for End of Life Care: applying a realist logic of analysis to a systematically searched literature review. Palliative Medicine, 34 (1). pp. 16-31. ISSN 0269-2163. E-ISSN 1477-030X. (doi:10.1177/0269216319867424) (KAR id:75340)

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Abstract

Background: We have undertaken a systematically searched literature review using a realist logic of analysis to help synthesise the diverse range of literature available on hospice at home services.

Aim: To find out in the existing literature what features of hospice at home models work best, for whom and under what circumstances.

Design: A realist logic of analysis was applied to synthesise the evidence focusing on mechanisms by which an intervention worked (or did not work). An initial programme theory was developed using the National Association for Hospice at Home standards, Normalisation Process Theory and through refinement using stakeholder engagement.

Data sources: PubMed, Science Direct, AMED, BNI, CINAHL, EMBASE, Health Business Elite, HMIC, Medline, PsychINFO, SCOPUS, Web of Science, DARE, Google Scholar, NHS Evidence, NIHR CRN portfolio database, NIHR journal library of funded studies, including searches on websites of relevant professional bodies [August 2014, June 2017, June 2019].

Results: Forty-nine papers were reviewed, of which 34 wereincluded contributing evidence to at least one of eight theory areas: marketing and referral, sustainable funding model, service responsiveness and availability, criteria for service admission, knowledge and skills of care providers, integration and co-ordination, anticipatory care, support directed at carers.

Conclusions: Our literature review showed how it was possible to develop a coherent framework and test it against 34 published papers and abstracts. Central to this review was theory building, and as further evidence emerges, our programme theories can be refined and tested against any new empirical evidence.

Item Type: Article
DOI/Identification number: 10.1177/0269216319867424
Uncontrolled keywords: Palliative care, palliative medicine, hospice and palliative care nursing, hospice at home, realist logic of analysis, programme theories
Subjects: H Social Sciences
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Centre for Health Services Studies
Depositing User: Meg Dampier
Date Deposited: 15 Jul 2019 09:16 UTC
Last Modified: 06 May 2020 03:19 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/75340 (The current URI for this page, for reference purposes)
Hashem, Ferhana: https://orcid.org/0000-0002-2544-1350
Wilson, Patricia M.: https://orcid.org/0000-0002-5787-9736
Butler, Claire: https://orcid.org/0000-0001-9501-2861
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