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Enhancing resilience and self-efficacy in the parents of children with disabilities and complex health needs

Whiting, M., Nash, A.S., Kendall, Sally, Roberts, S.A. (2019) Enhancing resilience and self-efficacy in the parents of children with disabilities and complex health needs. Primary Health Care Research & Development, 20 . Article Number e33. ISSN 1463-4236. E-ISSN 1477-1128. (doi:10.1017/S1463423619000112) (KAR id:73589)

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http://dx.doi.org/10.1017/S1463423619000112

Abstract

Aim: The principal aim of this study was to develop, pilot and evaluate an intervention intended to support the development of resilience and self-efficacy in parents of children with disabilities or complex health needs. Background: Previous research has found that families often experience physical, social and emotional stress in the context of living with and caring for their disabled child. The literature indicates that a key factor in determining how well the parents of these children cope with their situation may be how resilient and self-efficacious they are. Methods: A total of 16 parents of children with complex needs and disabilities were engaged in a series of guided conversations delivered during six contact visits with nurse co-researchers (community children’s nurses who had received an intensive three-day preparation programme). The conversations, which were supported with additional material that was designed specifically for use in the study, were based around four key themes: emotional coping, practical coping, support networks and ‘you and your child’. The impact of the intervention was evaluated using both qualitative and quantitative measures. Findings: When interviewed, parents reported increased self-belief and self-confidence and indicated that they felt better supported and stronger as a result of the intervention. This was consistent with the quantitative evaluation which identified significant improvements on scores for active coping and self-blame on the brief COPE inventory scale and for empathy and understanding and self-acceptance on the TOPSE scale. Scores on the self-report distress thermometer demonstrated a significant reduction in self-reported distress scores at the end of the intervention period.

Item Type: Article
DOI/Identification number: 10.1017/S1463423619000112
Uncontrolled keywords: children; complex health needs; disability; parenting; resilience; self-efficacy
Subjects: H Social Sciences
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Centre for Health Services Studies
Depositing User: Sally Kendall
Date Deposited: 23 Apr 2019 16:24 UTC
Last Modified: 03 Nov 2020 12:41 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/73589 (The current URI for this page, for reference purposes)
Kendall, Sally: https://orcid.org/0000-0002-2507-0350
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