Making it Meaningful: Caregiver Goal Selection in Positive Behavioral Support

Gore, Nick J., McGill, Peter (2019) Making it Meaningful: Caregiver Goal Selection in Positive Behavioral Support. Journal of Child and Familiy Studies, 28 (6). pp. 1703-1712. ISSN 1062-1024. E-ISSN 1573-2843. (doi:10.1007/s10826-019-01398-5)

Abstract

Objectives Positive Behavioral Support (PBS) is considered the treatment framework of choice for children with intellectual and developmental disabilities (IDD) at risk of behavior that challenges. PBS demands stakeholder engagement, yet little research has explored goal formation in this context for caregivers of children with IDD. Methods We used Talking Mats and semi-structured interviews to support 12 caregivers of children with IDD who displayed behaviours that challenge, to develop goals for PBS. Interviews covered quality of life for caregivers and their child, adaptive and challenging aspects of child behavior, and aspects of caregiver’s own behavior. Results Caregivers were able to form individualised and meaningful goals in relation to all domains, demonstrating rich insight into personal needs and needs of their child. The process of forming goals was psychologically and emotionally complex given prior experiences and needs of participants but effectively supported by the interview method. Conclusions We conclude that goal formation in PBS requires careful consideration and structuring but has the potential to support effective working relationships and ensure assessment and intervention is aligned with the needs and aspirations of families.

Item Type: Article
DOI/Identification number: 10.1007/s10826-019-01398-5
Uncontrolled keywords: PBS Caregivers Goals Challenging Behavior
Subjects: B Philosophy. Psychology. Religion
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research
Depositing User: Nick Gore
Date Deposited: 09 Apr 2019 11:02 UTC
Last Modified: 03 Jun 2019 09:40 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/73418 (The current URI for this page, for reference purposes)
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