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Patient and public involvement (PPI) in UK surgical trials: a survey and focus groups with stakeholders to identify practices, views, and experiences

Crocker, Joanna C., Pratt-Boyden, Keira, Hislop, Jenny, Rees, Sian, Locock, Louise, Olszowski, Sophie, Chant, Alan, Treweek, Shaun, Cook, Jonathan A., Woolfall, Kerry, and others. (2019) Patient and public involvement (PPI) in UK surgical trials: a survey and focus groups with stakeholders to identify practices, views, and experiences. Trials, 20 (119). ISSN 1745-6215. (doi:10.1186/s13063-019-3183-0) (KAR id:72817)

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https://doi.org/10.1186/s13063-019-3183-0

Abstract

Background and aims

Our study had two stages: 1) an online survey to identify current PPI practice in active UK-led, adult surgical trials; and 2) focus groups and interviews with key stakeholders (surgical trial investigators, administrators, and patient or public contributors) to explore their views and experiences of PPI.

Results

UK surgical trials involve patients and members of the public in a variety of different ways, most commonly at the beginning and end of the trial lifecycle and in oversight or advisory roles. These are not without challenges and there remain uncertainties about who best to involve, why, and how. Future research should aim to address these issues.

Item Type: Article
DOI/Identification number: 10.1186/s13063-019-3183-0
Uncontrolled keywords: Patient and public involvement (PPI), Surgery, Survey, Focus group, Clinical trial
Divisions: Faculties > Social Sciences > School of Anthropology and Conservation
Depositing User: K.Z. Pratt-Boyden
Date Deposited: 01 Mar 2019 15:11 UTC
Last Modified: 03 Jun 2019 09:30 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/72817 (The current URI for this page, for reference purposes)
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