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Developing an intervention to increase REferral and uptake TO pulmonary REhabilitation in primary care in patients with chronic obstructive pulmonary disease (the REsTORE study): mixed methods study protocol

Early, Frances, Wilson, Patricia M., Deaton, Christi, Wellwood, Ian, Dickerson, Terry, Ward, James, Jongepier, Lianne, Barlow, Ruth, Singh, Sally J., Benson, John, and others. (2019) Developing an intervention to increase REferral and uptake TO pulmonary REhabilitation in primary care in patients with chronic obstructive pulmonary disease (the REsTORE study): mixed methods study protocol. BMJ Open, 9 (1). ISSN 2044-6055. (doi:10.1136/bmjopen-2018-024806)

Abstract

Introduction: Chronic obstructive pulmonary disease (COPD) is a progressive lung disease associated with breathlessness, inability to exercise, frequent infections, hospitalisation and reduced quality of life. Pulmonary rehabilitation (PR), providing supervised exercise and education, is an effective and cost-effective treatment for COPD but is significantly underused. Interventions to improve referral and uptake have been tested and some positive results reported. However, interventions are diverse and no clear recommendations for practice can be made. This study aims to understand the challenges to referral and uptake in primary care, where most referrals originate, and to develop a flexible toolkit of resources to support referral and uptake to PR in primary care in the UK.

Methods and analysis: This is a mixed methods study informed by normalisation process theory and burden of treatment theory. In the first phase, general practitioners, practice nurses and PR providers will be invited to complete an online survey to inform a broad exploration of the topic areas. In phase 2 interviews and focus groups will be conducted with patients, healthcare professionals (HCP) in primary care, PR providers and commissioners to gain an in-depth understanding of the issues and needs. Toolkit development in phase 3 will draw together the learning from phases 1 and 2 and employ an iterative development process to build the toolkit jointly with patients and HCPs. It will be tested in primary care for usability and acceptability.

Item Type: Article
DOI/Identification number: 10.1136/bmjopen-2018-024806
Subjects: H Social Sciences
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Centre for Health Services Studies
Depositing User: Patricia Wilson
Date Deposited: 01 Feb 2019 12:44 UTC
Last Modified: 22 Jul 2019 08:05 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/72110 (The current URI for this page, for reference purposes)
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