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Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework

Daley, Stephanie, Murray, Joanna, Farina, Nicolas, Page, Thomas, E., Brown, Anna, Bassett, Thurstine, Livingston, Gill, Bowling, Ann, Knapp, Martin R J., Banerjee, Sube and others. (2018) Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework. International Journal of Geriatric Psychiatry, . pp. 1-8. ISSN 0885-6230. E-ISSN 1099-1166. (doi:10.1002/gps.4990) (KAR id:68829)

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https://doi.org/10.1002/gps.4990

Abstract

Background

We studied family carers of people with dementia and staff working in dementia services iteratively using in-depth individual qualitative interviews and focus groups discussions. Analysis used constant comparison techniques underpinned by a collaborative approach with a study-specific advisory group of family carers.

Results

For carers of people with dementia, the QOL construct was found to include condition-specific domains which are not routinely considered in generic assessment of QOL. This has implications for researchers, policy makers and service providers in addressing and measuring QOL in family carers of people with dementia.

Item Type: Article
DOI/Identification number: 10.1002/gps.4990
Uncontrolled keywords: Alzheimer’s disease (AD), Carers, Family carers, informal carers, Dementia, Quality of Life (QOL)
Subjects: B Philosophy. Psychology. Religion > BF Psychology
Divisions: Faculties > Social Sciences > School of Psychology
Depositing User: Anna Brown
Date Deposited: 28 Aug 2018 09:02 UTC
Last Modified: 29 May 2019 21:03 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/68829 (The current URI for this page, for reference purposes)
Daley, Stephanie: https://orcid.org/0000-0002-5842-0492
Farina, Nicolas: https://orcid.org/0000-0002-0635-2547
Brown, Anna: https://orcid.org/0000-0002-5612-2627
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