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How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation

Wilson, Patricia, Mathie, Elspeth, Poland, Fiona, Keenan, Julia, Howe, Amanda, Munday, Diane, Kendall, Sally, Cowe, Marion, Staniszewska, Sophie, Goodman, Claire and others. (2018) How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation. Journal of Health Services Research and Policy, 23 (2). pp. 98-106. ISSN 1355-8196. E-ISSN 1758-1060. (doi:10.1177/1355819617750688) (KAR id:65129)

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Abstract

Objectives: To explore how embedded patient and public involvement (PPI) is within mainstream health research following two decades of policy-driven work to underpin health research with PPI in England.

Methods: Realist evaluation using Normalization Process Theory as a programme theory to understand what enabled PPI to be embedded as normal practice. Data was collected through a national scoping and survey, and qualitative methods to track PPI processes and impact over time within 22 nationally funded research projects.

Conclusion: While PPI can be well-integrated within all types of research, policy makers should take account of tensions that must be navigated in balancing the moral and methodological imperatives.

Item Type: Article
DOI/Identification number: 10.1177/1355819617750688
Uncontrolled keywords: health research
Subjects: H Social Sciences > HM Sociology
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Centre for Health Services Studies
Depositing User: Patricia Wilson
Date Deposited: 08 Dec 2017 14:50 UTC
Last Modified: 06 May 2020 03:17 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/65129 (The current URI for this page, for reference purposes)
Wilson, Patricia: https://orcid.org/0000-0002-5787-9736
Kendall, Sally: https://orcid.org/0000-0002-2507-0350
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