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Learning to work together - lessons from a reflective analysis of a research project on public involvement

Howe, A., Mathie, E., Munday, D., Cowe, M., Goodman, C., Keenan, J., Kendall, S., Poland, F., Staniszewska, S., Wilson, P. and others. (2017) Learning to work together - lessons from a reflective analysis of a research project on public involvement. Research Involvement and Engagement, 3 (1). pp. 1-12. ISSN 2056-7529. (doi:10.1186/s40900-016-0051-x) (KAR id:59960)

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funders, in the UK, but there is relatively little published literature on what this means in

Policy literature endorses the need to include PPI representation at all stages of

to these roles; but details of how to make such inputs effective in practice are less

relatively few published case studies of how this can play out through the lived experience of PPI in research; early findings highlight key issues around access to

case study of PPI within a study about PPI in research.

Methods The aim of the study was to look at how the PPI representatives’ inputs had

evaluation and normalisation process theory to frame and analyse the data, which was

and observations made by PPI representatives and researchers; documented feedback


Findings Key findings included the need for named contacts who support, integrate

encouraged and supported to be as effective as possible. A structure for partnership

tensions were nonetheless identified around different roles, with possible implications

contribution and of their importance. Even in a team with research expertise in PPI, the

input to the project. Mutual commitment and flexibility, embedded through

enabling partnership between PPI representatives and researchers as more practical

different roles and their contributions may assist effective participation and satisfaction.

Item Type: Article
DOI/Identification number: 10.1186/s40900-016-0051-x
Uncontrolled keywords: Patient and public involvement in research, Partnership working, Stakeholder engagement
Subjects: H Social Sciences
H Social Sciences > HM Sociology
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Centre for Health Services Studies
Depositing User: Sally Kendall
Date Deposited: 20 Jan 2017 15:19 UTC
Last Modified: 16 Feb 2021 13:41 UTC
Resource URI: (The current URI for this page, for reference purposes)
Kendall, S.:
Wilson, P.:
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