Developing an Easy Read version of the Adult Social Care Outcomes Toolkit

Turnpenny, Agnes and Caiels, James and Whelton, Beckie and Richardson, Lisa and Beadle-Brown, Julie and Crowther, Tanya and Forder, Julien E. and Apps, Joanna and Rand, Stacey (2016) Developing an Easy Read version of the Adult Social Care Outcomes Toolkit. Journal of Applied Research in Intellectual Disabilities, . ISSN 1360-2322. E-ISSN 1468-3148. (In press) (doi:https://doi.org/10.1111/jar.12294) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

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Abstract

Background This paper reports the experiences of developing and pre-testing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) for self-report by people with intellectual disabilities. Method The study has combined survey development and pre-testing methods with approaches to create accessible information for people with intellectual disabilities. A working group assisted researchers in identifying appropriate question formats, pictures and wording. Focus groups and cognitive interviews were conducted to test various iterations of the instrument. Results Substantial changes were made to the questionnaire, which included changes to illustrations, the wording of question stems and response options. Conclusions The process demonstrated the benefits of involving people with intellectual disabilities in the design and testing of data collection instruments. Adequately adapted questionnaires can be useful tools to collect information from people with intellectual disabilities in survey research; however its limitations must be recognised.

Item Type: Article
Projects: [UNSPECIFIED] QORU
Uncontrolled keywords: quality of life, intellectual disability, autism, Easy Read, survey, cognitive testing
Subjects: H Social Sciences > HV Social pathology. Social and public welfare > HV3008 Mental handicap and social care
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Personal Social Services Research Unit
Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Tizard
Depositing User: Agnes Turnpenny
Date Deposited: 15 Nov 2016 21:52 UTC
Last Modified: 07 Feb 2017 09:56 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/58659 (The current URI for this page, for reference purposes)
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