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The Information needs of carers of people with epilepsy

Kendall, Sally, Thompson, D., Couldridge, L. (2004) The Information needs of carers of people with epilepsy. Seizure-European Journal of Epilepsy, 13 (7). pp. 499-508. ISSN 1059-1311. (doi:10.1016/j.seizure.2003.12.003) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided. (Contact us about this Publication)
Official URL
http://dx.doi.org/10.1016/j.seizure.2003.12.003

Abstract

Aim: The aim of the study was to explore the information needs of informal carers, and how information from health professionals can become more effective for families caring for people with epilepsy. Methods: A combined methodology was used, comprising an interview study and a survey. Twelve in-depth interviews with carers were carried out. The questionnaire was developed using the interview data, to which 70 carers responded. Results: Four main themes have been drawn from the study. • Carers’ of people with epilepsy have a need for improved and more appropriate levels of information giving by health professionals in both primary and secondary care • Carers’ perceived self-efficacy expectations in seeking information are positive but they do not always feel listened to • Carers’ prefer to receive information in a one-to-one setting but also need information from formats other than leaflets • Carers’ perceive barriers to having their information needs met, such as their needs being unrecognised in relation to the person with epilepsy.

Item Type: Article
DOI/Identification number: 10.1016/j.seizure.2003.12.003
Uncontrolled keywords: Carers’; Epilepsy; Information; Self-efficacy; Epilepsy services
Subjects: H Social Sciences > HV Social pathology. Social and public welfare > HV59 Institutional care/home care
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Centre for Health Services Studies
Depositing User: Tony Rees
Date Deposited: 29 Apr 2016 13:15 UTC
Last Modified: 29 May 2019 17:17 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/55193 (The current URI for this page, for reference purposes)
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