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The Long-Term Conditions Questionnaire (LTCQ): Conceptual framework and item development

Peters, Michele, Potter, Caroline, Kelly, Laura, Hunter, Cheryl, Gibbons, Elizabeth, Jenkinson, Crispin, Coulter, Angela, Forder, Julien E., Towers, Ann-Marie, A’Court, Christine, and others. (2016) The Long-Term Conditions Questionnaire (LTCQ): Conceptual framework and item development. Patient Related Outcome Measures, 7 . pp. 109-125. ISSN 1179-271X. E-ISSN 1179-271X. (doi:10.2147/PROM.S104552) (KAR id:55154)

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Purpose: To identify the main issues of importance when living with long-term conditions to refine a conceptual framework for informing the item development of a patient-reported outcome measure for long-term conditions.

Methods: Semi-structured qualitative interviews (n=48) were conducted with people living with at least one long-term condition. Participants were recruited through primary care. The interviews were transcribed verbatim and analysed by thematic analysis. The analysis served to refine the conceptual framework, based on reviews of the literature and stakeholder consultations, for developing candidate items for a new measure for long-term conditions.

Results: Three main organising concepts were identified ‘Impact of long-term conditions’, ‘Experience of services and support’ and ‘Self-care’. The findings helped to refine a conceptual framework leading to the development of 23 items that represent issues of importance in long-term conditions. The 23 candidate items formed the first draft of the measure, currently named the Long-Term Conditions Questionnaire (LTCQ).

Conclusions: The aim of this study was to refine the conceptual framework and develop items for a patient-reported outcome measure for long-term conditions, including single and multiple morbidities, and physical and mental health conditions. Qualitative interviews identified the key themes for assessing outcomes in long-term conditions and these underpinned the development of the initial draft of the measure. These initial items will undergo cognitive testing to refine the items prior to further validation in a survey.

Item Type: Article
DOI/Identification number: 10.2147/PROM.S104552
Subjects: H Social Sciences > H Social Sciences (General)
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Personal Social Services Research Unit
Depositing User: Jane Dennett
Date Deposited: 26 Apr 2016 15:17 UTC
Last Modified: 16 Feb 2021 13:34 UTC
Resource URI: (The current URI for this page, for reference purposes)
Forder, Julien E.:
Towers, Ann-Marie:
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