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The moral experience of illness and its impact on normalisation: Examples from narratives with Punjabi women living with rheumatoid arthritis in the UK

Sanderson, Tessa, Calnan, Michael W., Kumar, Kanta (2015) The moral experience of illness and its impact on normalisation: Examples from narratives with Punjabi women living with rheumatoid arthritis in the UK. Sociology of Health & Illness, 37 (8). pp. 1218-1235. ISSN 0141-9889. E-ISSN 1467-9566. (doi:10.1111/1467-9566.12304)

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http://dx.doi.org/10.1111/1467-9566.12304

Abstract

The moral component of living with illness has been neglected in analyses of long-term illness experiences. This paper attempts to fill this gap by exploring the role of the moral experience of illness in mediating the ability of those living with a long-term condition (LTC) to normalise. This is explored through an empirical study of women of Punjabi origin living with rheumatoid arthritis (RA) in the UK. Sixteen informants were recruited through three hospitals in UK cities and interviews conducted and analysed using a Grounded Theory approach. The intersection between moral experience and normalisation, within the broader context of ethnic, gender and socio-economic influences, was evident in the following: disruption of a core lived value (the centrality of family duty), beliefs about illness causation affecting informants’ ‘moral career’, and perceived discrimination in the workplace. The data illustrate the importance of considering an ethnic community’s specific values and beliefs when understanding differences in adapting to LTCs and changing identities.

Item Type: Article
DOI/Identification number: 10.1111/1467-9566.12304
Uncontrolled keywords: Rheumatoid arthritis, normality, ethnicity, moral experience, stigma
Subjects: H Social Sciences > H Social Sciences (General)
H Social Sciences > HM Sociology
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Social Policy
Depositing User: Lisa Towers
Date Deposited: 16 Mar 2016 10:14 UTC
Last Modified: 29 May 2019 17:00 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/54214 (The current URI for this page, for reference purposes)
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