ReseArch with Patient and Public invOlvement: a RealisT evaluation - the RAPPORT study

Wilson, Patricia M. and Mathie, Elspeth and Keenan, J. and McNeilly, Elaine and Goodman, Claire M. and Howe, Amanda and Poland, Fiona and Staniszewska, Sophie and Kendall, S. and Munday, Diane and Cowe, Marion and Peckham, Stephen (2015) ReseArch with Patient and Public invOlvement: a RealisT evaluation - the RAPPORT study. Health Services and Delivery Research, 3 (38). ISSN 2050-4349. (doi:https://doi.org/10.3310/hsdr03380) (Full text available)

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Abstract

Background Patient and public involvement (PPI) is a prerequisite for many funding bodies and NHS research ethics approval. PPI in research is defined as research carried out with or by the public rather than to, about or for them. While the benefits of PPI have been widely discussed, there is a lack of evidence on the impact and outcomes of PPI in research. Objectives To determine the types of PPI in funded research, describe key processes, analyse the contextual and temporal dynamics of PPI and explore the experience of PPI in research for all those involved. Mechanisms contributing to the routine incorporation of PPI in the research process were assessed, the impact of PPI on research processes and outcomes evaluated, and barriers and enablers to effective PPI identified. Design A three-staged realist evaluation drawing on Normalisation Process Theory to understand how far PPI was embedded within health-care research in six areas: diabetes mellitus, arthritis, cystic fibrosis, dementia, public health and learning disabilities. The first two stages comprised a scoping exercise and online survey to chief investigators to assess current PPI activity. The third stage consisted of case studies tracked over 18 months through interviews and document analysis. The research was conducted in four regions of England. Participants Non-commercial studies currently running or completed within the previous 2 years eligible for adoption on the UK Clinical Research Network portfolio. A total of 129 case study participants included researchers and PPI representatives from 22 research studies, and representatives from funding bodies and PPI networks.

Item Type: Article
Additional information: Contains information licensed under the Non-Commercial Government Licence v1.0.
Subjects: R Medicine > RA Public aspects of medicine
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Centre for Health Services Studies
Depositing User: Tony Rees
Date Deposited: 15 Sep 2015 12:43 UTC
Last Modified: 17 Jan 2017 11:52 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/50495 (The current URI for this page, for reference purposes)
Peckham, Stephen: https://orcid.org/0000-0002-7002-2614
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