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Living with learning disabilities: dying with cancer - Thirteen personal stories

Forrester-Jones, Rachel (2013) Living with learning disabilities: dying with cancer - Thirteen personal stories. Review of: Living with learning disabilities: dying with cancer - Thirteen personal stories by Tuffrey-Wijne, I.. Tizard Learning Disability Review, 18 (3). pp. 150-151. ISSN 1359-5474. (doi:10.1108/TLDR-02-2013-0012) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided) (KAR id:41408)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided. (Contact us about this Publication)
Official URL
http://dx.doi.org/10.1108/TLDR-02-2013-0012

Abstract

This book is a powerful and moving account of the experiences of 13 people with learning disabilities who were living with cancer. The author followed their lives as part of a 3-year research study, during which 10 people died. She spent extensive periods of time with them at their homes and day centres, in hospitals, hospices and nursing homes. In doing so, she gained a unique understanding of what it is like for individuals with learning disabilities to live with deteriorating health and how this may impact upon their families, friends and carers. How was each person's cancer diagnosed? How was their cancer and its implications explained to them? How much did they understand and how did they cope with treatment? What happened when they were dying? In answering these questions, the book exposes the suffering of people with learning disabilities at the end of their lives, but also their remarkable resilience and strength. In an optimistic final chapter, the author demonstrates how people with learning disabilities can best be supported at the end of life.

Item Type: Review
DOI/Identification number: 10.1108/TLDR-02-2013-0012
Uncontrolled keywords: bereavement, cancer, counselling, disability, health care, intellectual disabilities, palliative care, social care, social work
Subjects: H Social Sciences > H Social Sciences (General)
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Tizard
Depositing User: Rachel Forrester-Jones
Date Deposited: 12 Jun 2014 09:43 UTC
Last Modified: 16 Feb 2021 12:53 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/41408 (The current URI for this page, for reference purposes)
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