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Nurses’ responses to expert patients: The rhetoric and reality of self-management in long-term conditions: A grounded theory study

Wilson, Patricia M., Kendall, Sally, Brooks, Fiona (2006) Nurses’ responses to expert patients: The rhetoric and reality of self-management in long-term conditions: A grounded theory study. International Journal of Nursing Studies, 43 (7). pp. 803-818. ISSN 0020-7489. (doi:10.1016/j.ijnurstu.2005.10.011) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided) (KAR id:39087)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided. (Contact us about this Publication)
Official URL
http://dx.doi.org/10.1016/j.ijnurstu.2005.10.011

Abstract

Background

To:

Analyse how patient expertise is promoted and enabled through the self-management process.

A grounded theory approach was utilised with two concurrent data strands.

Setting

Via purposeful and theoretical sampling 100 health professionals (nurses, doctors, physiotherapists) and 100 adults affected by chronic disease participated.

Methods

Nurses were found to be most anxious about expert patients when compared to other professionals, which appeared to be linked with a lack of professional confidence and unfounded fears regarding litigation. However, nurse specialists often provided a negative case for this. As a whole, nurses were most able to meet the emotional needs of patients, but apart from nurse specialists did not articulate this as a skill.

Conclusion

Apart from nurse specialists the majority of nurses appeared limited in appropriately facilitating self-management. It is suggested that this is linked to an ongoing nursing culture of patient as passive, an over-emphasis on empirical knowledge and a feeling of vulnerability on the nurses’ part towards expert patients. The findings also indicate a rhetoric rather than reality of autonomous nursing roles within the chronic disease management agenda.

Item Type: Article
DOI/Identification number: 10.1016/j.ijnurstu.2005.10.011
Uncontrolled keywords: Chronic disease; Expert patient; Nurse's role; Patient participation; Self-care
Subjects: R Medicine > RA Public aspects of medicine
R Medicine > RT Nursing
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Centre for Health Services Studies
Depositing User: Tony Rees
Date Deposited: 08 Apr 2014 14:51 UTC
Last Modified: 16 Feb 2021 12:52 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/39087 (The current URI for this page, for reference purposes)
Wilson, Patricia M.: https://orcid.org/0000-0002-5787-9736
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