Exploring the cultural validity of rheumatology outcomes

Sanderson, Tessa and Hewlett, Sarah and Calnan, Michael .W. and Morris, Marianne and Raza, Karim and Kumar, Kanta (2012) Exploring the cultural validity of rheumatology outcomes. British Journal of Nursing, 21 (17). pp. 1015-1023. ISSN 0966-0461. (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

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Abstract

In rheumatoid arthritis (RA), the use of a 'core' set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the influence of patients' ethnic and cultural backgrounds on treatment outcomes. This pilot study identified 74 treatment outcomes from female Punjabi RA patients, including 21 new ones that were not identified in previous research with white British RA patients. The social impact of RA created significant additional burden for these Punjabi women, with 'less stigmatisation' and 'improved ability to carry out family duties' generated as important new outcomes. This study illustrates a need to address cultural validity in outcome elicitation and prioritisation, to ensure that interventions are evaluated using criteria that have meaning for people with that condition.

Item Type: Article
Subjects: H Social Sciences
H Social Sciences > HV Social pathology. Social and public welfare
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research
Depositing User: Mita Mondal
Date Deposited: 28 Mar 2014 10:30 UTC
Last Modified: 13 May 2014 15:46 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/38943 (The current URI for this page, for reference purposes)
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