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Carers' quality of life and experiences of adult social care support in England

Rand, Stacey, Malley, Juliette (2014) Carers' quality of life and experiences of adult social care support in England. Health & Social Care in the Community, 22 (4). pp. 375-385. ISSN 0966-0410. (doi:10.1111/hsc.12089)

Abstract

Informal carers make a vital contribution to the well-being of the people they care for or look after. Against the policy background in England, the purpose of this study was to explore the views of carers who use adult social care support services. A qualitative study with 31 carers, who were recruited via local authorities and carers’ organisations, was conducted between April and July 2012 to collect data on carers’ experiences and perceptions of their quality of life (QoL) with and without adult social care and support for themselves or the person they look after. Through framework analysis, three key themes were identified: (i) definitions of social care services ‘for’ the carer or ‘for’ care recipient and social care outcomes; (ii) carers’ access to social care services; and (iii) the meaning and value of informal care. We find that carers’ QoL is affected by social care support directed at carers and support directed at those they care for, as well as access to services, the experience of stigma in communities, and in how individual needs and preferences are considered when making decisions about care. While there is much to welcome in the direction of policy in England, this study has shown that there are some gaps in thinking around these areas that will need to be addressed if the lives of carers are to be improved.

Item Type: Article
DOI/Identification number: 10.1111/hsc.12089
Uncontrolled keywords: carers, social care
Subjects: H Social Sciences > HV Social pathology. Social and public welfare
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Personal Social Services Research Unit
Depositing User: Stacey Rand
Date Deposited: 07 Jan 2014 10:57 UTC
Last Modified: 29 May 2019 11:42 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/37735 (The current URI for this page, for reference purposes)
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