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What are the palliative care needs of people severely affected by neurodegenerative conditions, and how can a Specialist Palliative Care Service best meet these needs.

Veronese, Simone (2010) What are the palliative care needs of people severely affected by neurodegenerative conditions, and how can a Specialist Palliative Care Service best meet these needs. Doctor of Philosophy (PhD) thesis, University of Kent. (KAR id:33910)

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Abstract

Background: There is increasing recognition of the need for service development for

palliative care needs of people with advanced amyotrophic lateral sclerosis, multiple

specialist palliative care service (SPCS)

• a qualitative needs assessment using in-depth interviews with patients and their

population.

the impact of a new SPCS designed to meet the palliative care needs of the study

provision of SPCS with standard care .

• Qualitative study: 22 patients, 21 family carers and 11 professionals participated

problems. Professionals confirmed the high burden of problems, were positive

topics seemed lacking.

RCT. The comparison between the groups (FT-ST) after 16 weeks revealed

physical symptoms - pain, breathlessness, sleep disturbance and intestinal

Conclusions: This research confirms the high prevalence of physical symptoms,

neurodegenerative disorders and that these can be helped by specialist palliative care.

of the patients and improved symptom control for pain, breathlessness, quality of sleep

and intestinal symptoms compared to standard best care alone.

Item Type: Thesis (Doctor of Philosophy (PhD))
Thesis advisor: Oliver, David J.
Subjects: H Social Sciences
R Medicine > RC Internal medicine > RC321 Neuroscience. Biological psychiatry. Neuropsychiatry
R Medicine > RT Nursing
Divisions: Divisions > Directorate of Education > Centre for Professional Practice
Depositing User: Clair Waller
Date Deposited: 16 May 2013 11:14 UTC
Last Modified: 16 Feb 2021 12:45 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/33910 (The current URI for this page, for reference purposes)
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